I read this story in the Wall Street Journal.
and it probably describes feelings that other parents can relate to. The boy has very different symptoms from me so of course his story is different too, but I see how hard parents work on dealing with behaviors they don’t understand. I see how they seek answers from experts.
The part of the article I want to comment on is what the autism specialist told the father about his son. The insight the father received is interesting. He is told that his son perceives the world in fragments. In my opinion, the expert is giving an insight based on conjecture. How is she able to determine that the boy is perceiving reality in fragments? I don’t perceive in fragments, though my sensory system isn’t normal. I think autism has a lot of experts who guess a lot.
I am thinking that maybe I don’t have a title, but I am an expert in autism. I could tell the expert the struggle of autism from my own experience. I didn’t read textbooks in autism to help me tell others what autism is. I live autism. I see the world in autistic eyes. I have had so many theories all my life that severely impacted my life. I would say that many were totally fantasy.
I hope soon I can publish my book and tell about autism from the inside out.
I am an autistic guy with a message. I spent the first half of my life completely trapped in silence. The second - on becoming a free soul. I had to fight to get an education. Now I am a regular education student. I communicate by typing on an iPad or a letter board. My book, "Ido in Autismland" is now available on Amazon. It is an autism diary, telling the story of my symptoms, education, and journey into communication. I hope to help other autistic people find a way out of their silence too.
I am slowly learning more about my son, and how autism impacts him. But for now, you help me to see things in him that I couldn't before. I am grateful for your insights. I, too, hope your book will soon be published!!
ReplyDeleteJust tell me when the book is published!
ReplyDelete